In 2008, I created a short survey and invited members of the Yahoo 4S Support Group to participate, and this is the first 100 people who opted to complete it. This is raw data and may prove interesting for further studies on this patient population.


AGE OF PARTICIPANT:

Under 20 --- 14 %

Age 21-30 ---- 16.2 %

Age 31-40 ---- 25.3 %

Age 41-50 ---- 20.2 %

Age 51 and older ----- 24.2 %


GENDER

Male 27.3 %

Female 72.7 %



AGE OF ONSET OF 4S Symptoms

under 5 3.1 %

5 to 9 years old 29.9 %

9 to 13 years old 36..1 %

13 to 20 years old 20.6 %

21 years or older 11.3 %



NEGATIVE EFFECT ON OVERALL LIFE

Not at all 1.5 %

SLight-Mild 27.3 %

Moderate-Severe 34.8 %

Profound Effect 34.8 %


BEEN PRESCRIBED MEDICATIONS FOR 4S Symptoms


100 % have been prescribed One Medication
45.2 % have been prescribed Two Medications
19.4 % have been prescribed Three Medications



PROFESSIONALS CONSULTED

About 75% have consulted an MD, primary care physician, or ear specialist

About 60% have consulted a psychologist

About 35% have consulted a psychiatrist

About 28% have consulted an audiologist




USING EARPLUGS FOR RELIEF

Yes 55.6 %
No 44.4 %



Most COMMON TRIGGERS


Eating Noises
Chewing Gum Sounds
Sniffing or Breathing Sounds
Lip smacking
Fingernails Clicking
Throat Clearing, Hawking
Slurping Sounds, Swallowing noises
Teeth sucking
Typing, tapping, keyboards
Low pitched music sounds, bass speakers
Inhaling sounds
Certain letter sounds, p, k, t, s. sh